PETALING JAYA: Former prime minister Ismail Sabri Yaakob has urged Putrajaya to revise a RM25 million fund for uncommon ailments that was tabled within the earlier administration’s funds.
“The well being ministry might proceed what has been deliberate by the previous administration and create a particular fund for uncommon ailments,” Ismail mentioned.
He mentioned his administration had thought-about the fund as a option to help households struggling to deal with the payments related to long-term intensive care.
“If the particular fund nonetheless exists, it may be used to assist individuals earlier than they’ve to start out crowdfunding.
“It was tabled by former finance minister Tengku Zafrul Aziz in (the primary) Finances 2023 earlier than the change in authorities,” he mentioned after visiting Sufi Syafrina Shafiq, who was identified with a uncommon spinal muscular atrophy (SMA) sort 1 illness, at her home at present.
The six-month-old little one depends on mechanical ventilators and reportedly requires RM9 million for gene remedy and different associated remedies for restoration.
“I used to be knowledgeable that lots of the SMA sort 1 sufferers solely have an anticipated life span of two years, so I urge everybody to donate to Sufi’s therapy prices,” he mentioned.
Those that want to help might contact Sufi’s father, Syafiq Idrus, at 011-5978-7879.
Donations could also be made immediately into his Maybank account; 562021680453.